A shitty moment does not define the day.

Today was a 9, although it started flatlined, even negative….  As I reflect, I’m actually surprised I didn’t let it totally derail me. I sit here quite contented that I had a good day, maybe there really has been a wee bit of personal growth over the last few months…
So y’all know about MS, and my recent 6 day fast in an attempt to reset. Well, it didn’t work. One by one my symptoms came back, worse. My best guess is that there might be some sort of food allergy (getting tested next month) or that the stress of the whole ordeal set me off. 

One of my original presenting symptoms was bladder control – at 29 I was mortified. Still am. For the most part it is controlled, only when things get really bad does it come into play. Like last night.

Great way to start the day. Add the second snowless snow day for Dyl, contractors ripping apart my master bath, and a full schedule – I was stressed to the max the second I woke up. 

A little short on patience as baby d dilly dallied his way to breakfast, he responded with “I wish I was at papa’s house.” That was one hell of a dagger. I held it together, or so I thought I did, as I limped downstairs to the kitchen when I started sobbing. Piling on the self blame for everything from MS to leaky showers to the dissolution of my first marriage, I threw my tea mug in the sink – and shattered 3 more glasses that were in there in the process. Tears streaming down my face, I began cleaning it up and getting breakfast ready. 

Contractors arrive, noise ensues. I serve Dylan his breakfast – complete with strawberry smoothie – that he promptly spills all over the table, chair, and into the cat food. 

I literally just finished the great glass massacre cleanup when the strawberry disaster occurs. 

More tears. This time both of us. 

Meanwhile phone is blowing up, banging from above, cat wants food – life is still going on.

Don’t they know I hurt? Don’t they know that everything in this moment totally sucks? 

Or does it. 

I took a deep breath. Refocused. Pulled up my big girl panties and proceeded with the day.

And you know what? It got better. Things got done. Progress was made. Joy was had. 

So much so that this morning was but a distant memory that I was only reminded of just now when I went to climb into bed, and realized I never finished washing the sheets.

Life is what we make of it. It’s not what happens to us, it’s how we respond. My tears and guilt were normal reactions, it’s ok to feel those feelings, process them, and move on. 

When we stay stuck or try to avoid feeling them, we don’t serve ourselves or the universe. We reject the gift that each day is and we let our future be decided for us. That is a life by default.

Mine is a life by design. 💖 

Advertisements

Cape wearing 101

I like to think of myself as a superhero – capable of anything I set my mind to, limitless – because of this, I get to experience so many amazing things! Every once in a while though, I encounter kryptonite. At these times I have to listen to my body and do what’s best for the long haul, think big picture. Pain has been creeping in lately and I’ve largely ignored it. Last night my body said “basta!” I tried every trick in the book and it wasn’t working and I was left with a decision: take traditional medicine and be wiped out for the better part of a day or continue to endure and likely end up worse losing more time as I push beyond my breaking point.
 
Now y’all know I shun modern medicine, not wanting to get caught in the doctor trap where side effect after side effect add up and you don’t even know what the original problem was. I am pretty adamant about letting my body heal itself by taking better care of it – treating it like the miracle that it is….at the same time I am totally grateful for having access to amazing health care and the people who dedicate their lives to the cause.
 
So at around midnight last night I had a sit down with myself and decided that the best course of action was to take medicine to allow my body to chill the f*ck out and get to work healing. I knew it would knock me out for at least 12 hours – however I am no good to anyone if I can’t stop crying or lose mobility completely. So I emailed my morning appointments to let them know I might not be available and swallowed a pill and a little pride at the same time.
 
T tried to wake me up in the morning. Poor guy only wanted me to feel better and was completely helpless – he left a cookie and a cup of tea on my nightstand, turned the ringer up on my phone so he could check on me and kissed my forehead on his way out.
 
I woke up around 11am. Pain level dropped significantly and my body was full of gratitude for the rest. It took me about an hour to fully wake up – and during that time my amazing team had my back. I decided full disclosure was best rather than hiding my weakness and we shared with all who tried to connect with me what really happened.
 
Sometimes when you have the label of a chronic disease you want to hide it, thinking it’s a weakness, when in reality it is just another piece of who you are. I truly believe if we all shared our realities – that everyone has their “thing” – and we’d find strength in coming together – solutions based on our experiences – and in the end be stronger together.
 
I look at the pictures from last night and I can see the pain in my eyes, my posture looks awkward as I navigated all movements while doing my best to avoid causing my nerves to jump, stab, and burn each time. I get a little sad when I can see my suffering. I know I am not alone though, and I know there is a blessing in everything if we just look for it.
 
I’m not 100% today, I am a lot better than yesterday. My mind is clearer and my body is no longer screaming. I know I did the right thing at the time.
So today I want to shout out praise for the medical community, give strength and high fives to all who walk through life carrying an invisible cross, and continue on my path with heart and eyes wide open.
 
Now it’s time to dust off my cape, straighten my tiara, and get back to life. ❤
 
Much love kids, thank you for being a part of my journey. xo
9efc9246dd7963dd431bb028735ecdfa.jpg